数字健康干预用于炎症性肠病患儿自我管理的范围综述
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女,硕士,主管护师,科研护士

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科研项目:华中科技大学同济医学院附属同济医院科研基金项目(2023D41)


Scoping review of digital health interventions for self-management in children with inflammatory bowel disease
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    目的 系统综述数字健康干预在炎症性肠病患儿自我管理中应用现状,确定其技术类型、核心内容及评价指标,为本土化数字健康干预开发提供参考。 方法 基于范围综述框架,检索国内外数据库中有关数字健康干预技术在炎症性肠病患儿自我管理中应用的研究。检索时限为建库至2025年4月30日。对纳入文献进行筛选和归纳总结。 结果 纳入14篇文献,涵盖应用程序、网站、远程医疗、虚拟现实技术、无线监测技术、无线远程随访六类技术,干预内容聚焦疾病症状监测、医疗依从性、照顾技能、营养管理、心理健康五方面。结局指标涉及知识、技能、过渡准备、心理功能、生活质量。 结论 炎症性肠病患儿数字健康干预技术多样,但缺乏统一干预要素与评价标准。未来可结合我国医疗体系特点,构建以护士为主导的数字健康管理平台,制订分龄干预与家庭协同标准,以提升患儿自我管理能力。

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    Objective To systematically review the application status of digital health interventions in self-management among children with inflammatory bowel disease, clarify its technical types, core contents and evaluation indicators, and to provide reference for the development of localized digital health interventions. Methods Based on the scoping review framework, domestic and international databases were searched for studies on the application of digital health intervention technologies in self-management of children with inflammatory bowel disease.The retrieval time frame was from the database inception to April 30, 2025.The included literature were screened, summarized and analyzed. Results A total of 14 literature were included, covering 6 types of technologies:mobile applications, web-based platforms, telemedicine, virtual reality technology, wireless monitoring technology, and wireless remote follow-up.The intervention contents focused on 5 aspects:disease symptom monitoring, medical adherence, caregiving skills, nutritional management and mental health.The outcome indicators involved knowledge, skills, transition readiness, psychological function and quality of life. Conclusion Digital health intervention technologies for children with inflammatory bowel di-sease are diverse, but there is a lack of unified intervention elements and evaluation criteria.In the future, combined with the characteristics of China′s medical system, we can construct a nurse-led digital health management platform, formulate age-specific intervention and family collaboration standards, so as to improve the self-management ability of children with inflammatory bowel disease.

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张萍,朱慧云,余艮珍,徐蓉,黄海珊,吴玉洁.数字健康干预用于炎症性肠病患儿自我管理的范围综述[J].护理学杂志,2026,41(3):22-27

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  • 收稿日期:2025-07-15
  • 最后修改日期:2025-09-18
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  • 在线发布日期: 2026-03-09