部分家庭参与式照护模式下极低出生体重儿父母照护体验的旅程地图
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女,硕士,护士

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国家儿童医学中心学科带头人培育计划(EKXDPY202305);复旦大学附属儿科医院“医+X”交叉创新团队孵化项目(EKYX202405);上海市科委科技创新行动计划项目(24DZ2202800)


Journey mapping of parental care experiences for very low birth weight infants under the Partial Family-integrated Care Model
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    目的 识别部分家庭参与式照护模式下极低出生体重儿父母在新生儿重症监护室的照护需求,为提升其照护体验和优化家庭参与式护理管理提供参考。方法 采用目的抽样,选取2024年5-6月在新生儿重症监护室住院的18名极低出生体重儿父母进行半结构化访谈,运用定向内容分析法对资料进行整理和分析。结果 提炼出部分家庭参与式照护的极低出生体重儿父母在新生儿重症监护室母婴分离期、家庭参与式护理第1天、家庭参与式护理后期(出院前2 d,且仍进行家庭参与式护理)和新生儿重症监护室出院时4个阶段患儿父母关注的问题、情绪、痛点与需求4个方面共33个主题。结论 家庭参与式照护模式下极低出生体重儿父母在患儿住院不同阶段有不同的关注点、情绪体验和需求。可据此制订和实施家庭参与式照护模式,提升照护体验,改善患儿长期结局。

    Abstract:

    Objective To identify the caregiving needs of parents of very low birth weight infants (VLBWI) in the NICU under Partial Family-integrated Care Model, and to provide references for improving the care experience of VLBWI parents and optimizing family-integrated care management.Methods Purposeful sampling was used to select 18 parents of VLBWI hospitalized in the NICU from May to June 2024 for semi-structured interviews.Directional content analysis method was employed to organize and analyze the data.Results A parental journey map was developed that delineated parents′ concerns, emotions, pain points, and needs across four stages:(1) maternal-infant separation during NICU hospitalization, (2) day 1 of family integrated care participation, (3) later stage of family integrated care (2 days before discharge while still participating in care), and (4) at NICU discharge.Across these stages, 33 themes were extracted covering the four domains of concerns, emotional experiences, pain points, and needs.Conclusion Under the Partial Family- integrated Care Model, parents of VLBWI exhibit distinct concerns, emotional responses, and needs at different phases of their infant′s hospitalization.These insights can inspire the development and implementation of tailored family centered care interventions to enhance parental experience and potentially improve long term outcomes for the infant.

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裘梦凡,董瑶瑶,吕天婵,吴熹,杨童玲,夏倩文,胡晓静.部分家庭参与式照护模式下极低出生体重儿父母照护体验的旅程地图[J].护理学杂志,2025,(23):41-46

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  • 收稿日期:2025-07-05
  • 最后修改日期:2025-09-10
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  • 在线发布日期: 2026-01-14