脑卒中患者居家康复运动自我决策困境的质性研究
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女,硕士,护师

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江苏省老年健康科研项目(LKM2023024);南京市卫生科技发展重点项目(ZKX21030);南京中医药大学自然科学基金项目(XZR2023074)


Dilemma of selfdecision making in homebased rehabilitation exercise among stroke patients:a qualitative study
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    目的 基于自我决定理论,探究脑卒中患者居家运动康复自我决策的困境,为制订脑卒中患者自我决策方案提供借鉴。方法 采用描述性质性研究方法,2023年11月至2024年5月选取16例脑卒中患者进行半结构式访谈,采用主题分析法分析资料。结果 共提炼出3个主题及12个亚主题:自主性需求困境(知识壁垒下的决策犹豫、效能感不足引发的决策懈怠、家属干预下的决策冲突、即时满足倾向带来的消极决策),胜任感需求困境(不良决策结果引发的自我怀疑、负性体验与高损伤感知导致决策回避、多病共存下的决策复杂性、信息障碍带来决策迷茫),归属感需求困境(家庭支持缺失加重决策压力、同伴经验适配性不足的决策参考困境、康复服务可及性障碍对决策的制约、社会偏见引发的决策价值感贬损)。结论 脑卒中患者居家康复运动存在复杂的自我决策困境,医护人员应依托数字化平台,采取跨专业、全周期的个性化决策支持策略,实现居家运动康复科学化与精准化,改善患者远期康复结局。

    Abstract:

    Objective To explore the dilemmas in self-decision making for home-based rehabilitation among stroke patients based on self-determination theory, and to provide references for developing self-decision support programs for stroke patients.Methods A descriptive qualitative research method was used.From November 2023 to May 2024, 16 stroke patients were selected for semi-structured interviews, and thematic analysis was used to analyze the data.Results A total of three themes and twelve sub-themes were refined:autonomy needs dilemma (decision hesitation under knowledge barriers, decision laziness caused by insufficient sense of competence, decision conflict under family intervention, negative decision-making due to immediate satisfaction tendency), competence needs dilemma (self-doubt caused by poor decision outcomes, decision avoidance due to negative experiences and high da-mage perception, decision complexity under co-morbidity, decision confusion due to information barriers), and belongingness needs dilemma (decision pressure aggravated by lack of family support, decision reference dilemma due to insufficient adaptation of peer experience, decision constraints due to accessibility barriers of rehabilitation services, decision value depreciation caused by social prejudice).Conclusion Stroke patients face complex dilemmas in self-decision making for home-based rehabilitation exercise.Medical staff should adopt interdisciplinary, full-cycle personalized decision support strategies base on digital platforms to achieve scientific and precise home-based exercise rehabilitation, and improve long-term rehabilitation outcomes.

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徐婕,王清,邵佳宁,丛孙玲,韩雨馨.脑卒中患者居家康复运动自我决策困境的质性研究[J].护理学杂志,2025,40(21):84-88

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  • 收稿日期:2025-02-23
  • 最后修改日期:2025-08-15
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  • 在线发布日期: 2025-12-09