异基因造血干细胞移植患儿照顾者饮食管理体验的质性研究
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女,硕士,主管护师

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2024年度苏州市护理学会科研项目(SZHL-A-202408);2024年度苏州大学附属儿童医院护理科研项目(A02);2023年度苏州大学附属儿童医院“遂园”临床研究项目(2023SYLCYJ10)


The experiences of caregivers of pediatric patients undergoing allogeneic hematopoietic stem cell transplantation:a qualitative study
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    目的 探讨异基因造血干细胞移植患儿照顾者的饮食管理体验,为制订针对性的护理干预提供参考。方法 采用描述性质性研究,以健康信念模型为理论框架,对17名异基因造血干细胞移植患儿照顾者进行面对面、半结构式深入访谈,采用定向内容分析法对资料进行分析。结果 共提炼出5个主题,15个亚主题,包括饮食变化引发的健康风险认知(体质量下降,营养摄入不足,疲乏,情感抗拒),合理饮食管理的积极效应认知(提高患儿食欲和接受度,改善患儿健康状况,增强自我责任感),饮食管理中的障碍体验(饮食指导信息冲突,饮食准备困扰,患儿饮食依从性低),饮食管理行为的能动性特征(情绪应对的双重性,行为模式的差异性)及优化型饮食管理指导需求(可视化饮食管理指导,阶段性饮食管理指导,依托信息平台的饮食管理指导)。结论 异基因造血干细胞移植患儿照顾者在饮食管理过程中存在挑战与需求。医护人员应关注患儿饮食行为改变,优化干预策略,增强照顾者自我效能,提升其饮食管理能力。

    Abstract:

    Objective To explore the dietary management experiences of caregivers of pediatric patients undergoing allogeneic hematopoietic stem cell transplantation (allo-HSCT), and to provide references for developing targeted nursing interventions. Methods A descriptive qualitative study was conducted using the Health Belief Model as the theoretical framework. Face-to-face, semi-structured in-depth interviews were carried out with 17 caregivers of pediatric patients undergoing allo-HSCT. Data were analyzed using directed content analysis. Results Five themes and fifteen subthemes were identified: perceptions of health risks associated with dietary changes (weight loss, inadequate nutritional intake, fatigue, emotional resistance); recognition of the positive effects of proper dietary management (improved appetite and acceptance, better health outcomes, enhanced sense of responsibility); barriers to dietary management (conflicting dietary guidance, difficulties in meal preparation, poor patient adherence); agentic characteristics of dietary management behaviors (dual nature of emotional coping, differences in behavior patterns); and demand for optimized dietary management guidance (visualized dietary guidance, stage-specific dietary guidance, information platform-based dietary guidance). Conclusion Caregivers of pediatric patients undergoing allo-HSCT face significant challenges and unmet needs in dietary management. Healthcare professionals should pay close attention to changes in patients′ eating behaviors, optimize intervention strategies, strengthen caregivers′ self-efficacy, and improve their capacity for effective dietary management.

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张清,王敏,姚文英,周雪梅.异基因造血干细胞移植患儿照顾者饮食管理体验的质性研究[J].护理学杂志,2025,40(20):11-15

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  • 收稿日期:2025-05-12
  • 最后修改日期:2025-07-06
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  • 在线发布日期: 2025-11-24