中青年脑卒中后吞咽障碍患者康复需求旅程地图
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女,博士在读,主管护师

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江西省科技厅成果转化类项目(20171BEI90007);江西省教育厅科学技术研究项目(GJJ201216)


Journey mapping of rehabilitation needs for young and middle-aged post-stroke dysphagia
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    目的 借助旅程地图识别中青年脑卒中后吞咽障碍患者康复管理中的挑战和多维需求,为优化该患者的全旅程康复照护提供支持。方法 运用描述性质性研究方法,于2024年7月至2025年2月选取16例中青年卒中后吞咽障碍患者进行半结构化访谈。采用定向内容分析法分析资料,并绘制患者旅程地图。结果 按诊疗时间轴,从任务、情绪和痛点3个维度将患者的康复需求归纳为筛查与专科评估、医患共同决策、患者教育需求、遵从康复训练、经济毒性风险、口腔衰弱应对等28个主题。结论 中青年脑卒中后吞咽障碍患者康复需求动态变化且多维交织,未来可引入智能筛查与远程随访系统,设计个性化康复策略,提升患者的康复效果。

    Abstract:

    Objective To identify the challenges and multidimensional rehabilitation needs of young and middle-aged patients with post-stroke dysphagia through the use of journey mapping, and to provide support for optimizing comprehensive rehabilitation care across the entire patient journey.Methods Descriptive qualitative research was conducted from July 2024 to February 2025.Sixteen young and middle-aged post-stroke dysphagia patients were selected for semi-structured interviews.Directed content analysis was used to analyze the data, and a patient journey map was created.Results Along the timeline of diagnosis and treatment, patients′ rehabilitation needs were summarized across three dimensions (tasks, emotions, and touchpoints) resulting in 28 themes, including screening and specialized assessment, shared decision-making between doctor and patient, patient education needs, adherence to rehabilitation training, risk of financial toxicity, and coping with oral frailty.Conclusion The rehabilitation needs of young and middle-aged post-stroke dysphagia patients are dynamically changing and multidimensionally intertwined.Future interventions may incorporate intelligent screening and remote follow-up systems and design personalized rehabilitation strategies to improve patient outcomes.

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李立群,鄢茵,刘玲,何朝珠,邵秀芹.中青年脑卒中后吞咽障碍患者康复需求旅程地图[J].护理学杂志,2025,(15):87-92

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  • 收稿日期:2025-03-05
  • 最后修改日期:2025-05-07
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  • 在线发布日期: 2025-08-25