肝硬化失代偿期患者自我营养管理体验的质性研究
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女,本科,主管护师

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华中科技大学同济医学院附属同济医院基金项目(2023D05)


The lived experience of self-management of nutrition in patients with decompensated cirrhosis:a qualitative study
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    摘要:

    目的 了解肝硬化失代偿期患者自我营养管理体验,为临床制订有效的营养管理方案提供依据。方法 采用现象学研究方法,对13例肝硬化失代偿期患者进行半结构化访谈收集资料,运用Colaizzi七步分析法提炼主题。结果 共提炼出4个主题,7个亚主题:对营养管理缺乏内在动机、对营养管理存在认知偏差(认知不足、质疑营养管理效果)、营养管理中的心理痛苦(对营养管理的焦虑、饮食限制的困扰和生活习惯的剥夺感、对家庭的愧疚感)及外在支持不足(缺乏专业指导和帮助、社会支持薄弱)。结论 肝硬化失代偿期患者的营养管理具有复杂和干预难度大的特点,医护人员应提供专业的指导和心理支持。

    Abstract:

    Objective To explore the experiences of patients with decompensated cirrhosis regarding self-management of nutrition and to provide evidence for formulating effective nutritional management plan in clinical practice. Methods A phenomenological research design was utilized. Semi-structured interviews were conducted among 13 patients with decompensated cirrhosis to gather qualitative data. Themes were identified using Colaizzi′s seven-step method of data analysis. Results Four main themes and seven sub-themes were identified:lack of intrinsic motivation, cognitive bias (insufficient knowledge and doubt about the efficacy of nutritional management), psychological distress (anxiety related to nutritional management, distress from dietary restrictions and a sense of deprivation of daily habits, and feelings of guilt towards the family), and insufficient external support (lack of professional guidance and help, and lack of social support). Conclusion Intervention on nutritional management for patients with decompensated cirrhosis is complex and challenging. Medical staff should provide patients with professional guidance and psychological support.

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郜琳娜,陈羽双,胡露红,匡曼,陈瑞,刘筱.肝硬化失代偿期患者自我营养管理体验的质性研究[J].护理学杂志,2025,(14):43-46

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  • 收稿日期:2025-01-10
  • 最后修改日期:2025-03-27
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  • 在线发布日期: 2025-08-13