离散选择实验测量临终患者及家庭照护者 安宁疗护偏好的范围综述
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女,硕士在读,学生

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江苏省干部保健科研课题面上课题(BJ24002);南京医科大学第一附属医院临床能力提升工程护理重大项目(JSPH-NA-2021-1)


Discrete choice experiments eliciting hospice care preferences in terminally ill patients and family caregivers:a scoping review
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    摘要:

    目的 对离散选择实验测量临终患者及家庭照护者安宁疗护选择偏好的实验设计、调研实施过程和主要结果进行范围综述。方法 依据改进的范围综述方法论框架,系统检索国内外相关数据库,检索时限为建库至2024年11月。由2名研究者独立进行文献筛选和数据提取。结果 最终纳入18篇文献,13篇文献研究对象包括癌症患者,7篇文献纳入照护者群体。共归纳12个属性维度,其中经济维度、患者临床结局和服务获取在研究中纳入频次最高。患方最重视的属性包括疼痛管理、生命质量和经济成本,临终照护地点、服务质量和服务获取等也对偏好产生一定影响。结论 离散选择实验的研究设计和报告透明度需进一步完善,建议未来从不同人群、属性维度和偏好影响因素等方面深入探索,为提升安宁疗护服务水平、扩大服务范围提供高质量证据。

    Abstract:

    Objective To conduct a scoping review on study design, research implementation, and key findings of discrete choice experiments (DCEs) used to elicit hospice care preferences in terminally ill patients and family caregivers. Methods Following a modified scoping review methodological framework, a systematic search was conducted in both domestic and international databases from the databases inception to November 2024. Two researchers independently performed literature screening and data extraction. Results A total of 18 studies were included, of which 13 focused on cancer patients and 7 involved caregiver populations. Twelve attribute dimensions were identified, with economic dimensions, patient clinical outcomes, and service accessibility being the most frequently included. Patients placed the highest value on pain management, quality of life, and economic cost, while place of care, service quality, and service accessibility also influenced preferences. Conclusion The design and reporting transparency of DCEs studies need further improvement. Future explorations are encouraged to focus on diverse populations, attribute dimensions, and influencing factors,to provide high-quality evidence on preferences for enhancing and expanding hospice care services.

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陈昱霆,余姗姗,张玉玺.离散选择实验测量临终患者及家庭照护者 安宁疗护偏好的范围综述[J].护理学杂志,2025,(10):123-128

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  • 收稿日期:2024-12-25
  • 最后修改日期:2025-02-23
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  • 在线发布日期: 2025-06-27