Objective To identify points of need at different stages in patients with sudden deafness and ear fullness based on journey map, so as to identify points of opportunity to optimize whole journey care for this group. Methods From January to May 2024, 13 patients with sudden deafness and ear fullness were selected for semi-structured interviews using purposive sampling method, and the interview data were analyzed using directed content analysis. Results According to the timeline of the clinic and the four dimensions of tasks, emotions, points of need, and related persons, the health management needs of patients with sudden deafness and ear fullness were categorized into 35 themes, including identifying early symptoms, symptom management, physiological needs, psychological needs, and so on, and the patients′ health management journey was mapped out. Conclusion According to the drawn health management journey map of patients with sudden deafness and ear fullness, targeting the demand points and proposing optimization strategies can provide accurate and quality nursing services for patients.