终末期患者与家属治疗决策一致性研究
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女,硕士,主管护师

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南充市社会科学研究“十三五”规划2017年度项目(NC2017C066);川北医学院附属医院2017年度院级科研发展计划项目


Consistency on end of life decision-making in terminal stage patients and their families
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    目的 了解终末期患者和家属治疗决策意向的一致性。方法 采用方便抽样法,抽取南充市2所三级甲等医院终末期患者及 家属268对,应用自行设计的终末期治疗决策意愿调查表分别进行调查。结果 终末期患者与家属在“患者参与制定治疗决策”、 “以提高生活质量为目的的姑息治疗”决策一致性为69.03%、74.63%(Kappa值分别为0.529、0.530,均 P<0.01);其余4项决 策一致性为32.84%~47.39%(Kappa值为0.080~0.210;P<0.05,P<0.01)。结论 终末期患者与家属治疗决策意向存在差 异,家属的治疗决策无法完全体现患者真实意愿。

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    Objective To determine the consistency on endoflife decisionmaking in terminalstage patients and their families. Methods A total of 268 pairs of terminalstage patients and their families were selected from 2 tertiary hospitals in Nanchong using convenience sampling and were asked to complete a selfdesigned questionnaire regarding endoflife decision-making intentions separately. Results The consistency on "patient participation in making treatment decision" and "palliative treatment for improving quality of life" was 69.03% and 74.63% respectively, with Kappa values being 0.529 and 0.530 (P<0.01 for both). The consistency on the rest 4 decisions ranged from 32.84% to 47.39%, with the Kappa values being 0.080-0.210 (P<0.05, P<0.01). Conclusion There is a difference in treatment decisions between terminalstage patients and their families. Treatment decisions made by family members cannot fully reflect desire of patients.

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高茜,胡建萍,何东梅,梁兰.终末期患者与家属治疗决策一致性研究[J].护理学杂志,2019,34(10):80-83

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  • 收稿日期:2018-12-19
  • 最后修改日期:2019-02-12
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  • 在线发布日期: 2022-08-08