青少年与年轻成人癌症患者预立医疗照护计划的范围综述
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女,硕士在读,学生

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2023年度河南省国家中医药传承创新中心科研专项(2023ZXZX1113);2021年第二批河南省卫生健康国家中医临床研究基地科研专项(2021JDZX2137);2025年河南省科技攻关项目(252102311130)


A scoping review of advance care planning for adolescent and young adult cancer patients
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    目的 对青少年与年轻成人癌症患者预立医疗照护计划相关文献进行范围审查,分析预立医疗照护计划在青少年与年轻成人癌症患者领域的研究现状。方法 在明确研究问题后,检索Cochrane Library、PubMed、Embase、Web of Science、中国知网、万方数据知识服务平台、维普网、中国生物医学文献服务系统数据库中的相关文献,检索时间为建库至2024年6月。按照纳入和排除标准筛选文献,并对纳入的文献进行内容提取、汇总和分析。结果 共纳入13篇文献,其中2篇横断面调查,4篇回顾性队列研究,5篇随机对照研究及基于2篇对随机对照研究进行二次分析的混合研究。现有文献证实,青少年与年轻成人癌症患者预立医疗照护计划参与率为37.0%~74.1%;相关干预措施包括以家庭为中心的预立医疗照护计划干预、使用视频决策支持/辅助工具、与患者及其代理人或家庭进行沟通计划未来医疗决策,能够改善癌症患者及其代理人或家庭间临终偏好的一致性,但在改善患者焦虑抑郁程度方面有待进一步验证;筛选出适用于青少年与年轻成人癌症患者的预立医疗照护计划辅助工具6种;预立医疗照护计划干预时机发生在癌症任意阶段。结论 青少年与年轻成人癌症患者预立医疗照护计划参与率欠佳,干预效果和干预时机有待进一步探究。未来应进一步开展相关研究以调查青少年与年轻成人癌症患者预立医疗照护计划需求,开展临床研究验证干预效果,开发本土化特异性的预立医疗照护计划工具,探讨关键干预节点。

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    Objective To conduct a scoping review of the literature related to advance care planning (ACP) for adolescents and young adults (AYAs) with cancer, and to analyze the current state of research in this area.Methods Following the formulation of the research question, relevant literature was retrieved from the Cochrane Library, PubMed, Embase, Web of Science, China National Knowledge Infrastructure (CNKI), Wanfang Data, VIP Database, and SinoMed, covering the period from database inception to June 2024.Literature was screened according to inclusion and exclusion criteria, and data from the included studies were extracted, summarized, and analyzed.Results A total of 13 studies were included, comprising 2 cross-sectional surveys, 4 retrospective cohort studies, 5 randomized controlled trials (RCTs), and 2 mixed-method studies based on secondary analyses of RCTs.The existing literature indicated ACP participation rate among AYAs with cancer was between 37.0% and 74.1%.Relevant interventions included family-centered ACP interventions, the use of video decision support tools, and communication strategies with patients and their proxies or families regarding future medical decisions, which could enhance the consistency of end-of-life preferences between cancer patients and their proxies or families; however, further validation was needed regarding their impact on reducing patient anxiety and depression levels.Six ACP support tools suitable for AYAs with cancer were identified, and the timing of ACP interventions occurred at any stage of the cancer trajectory.Conclusion Participation rates in ACP among AYAs with cancer are suboptimal, and the effectiveness and timing of interventions warrant further investigation.Future research should focus on exploring the needs for ACP among AYAs with cancer, conducting clinical studies to validate intervention outcomes, developing localized and specific ACP tools, and identifying key intervention points.

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王宏宇,秦元梅,吴方萍,周久欣,周雨洁,高浩然.青少年与年轻成人癌症患者预立医疗照护计划的范围综述[J].护理学杂志,2025,(9):115-120+125

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  • 收稿日期:2024-11-01
  • 最后修改日期:2025-01-06
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  • 在线发布日期: 2025-06-05