食管癌患者经济毒性体验及应对措施的质性研究
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女,硕士,主管护师

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2018年北京市优秀人才培养资助项目(2018000021469G220);2020年北京市医院管理中心青年人才培养“青苗”计划(QML202000309);2022年中国医学科学院临床与转化医学研究专项项目(2022-I2M-C&T-B-085)


Experience of financial toxicity and coping strategies among patients with esophageal cancer:a qualitative study
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    摘要:

    目的 了解食管癌患者经济毒性心理体验与应对措施,为深入理解食管癌患者经济毒性的内涵、采取适合的应对提供参考。 方法 采用现象学研究法,目的选取25例食管癌患者进行半结构式深度访谈。采用Giorgi现象学分析法分析资料并提炼主题。 结果 提炼了食管癌患者经济毒性体验3个主题:承担直接及间接多方面经济负担;心理压力、担忧未来与不确定感;经济问题对日常生活影响严重。应对措施4个主题:缩减非必要的治疗成本;降低生活支出;寻求有限的经济援助;选择与决策工作岗位。 结论 食管癌患者面临不同程度的经济毒性问题,对身心健康造成多种影响,其自身也采取一些措施应对经济毒性。建议国家政策及管理者高度关注患者经济毒性问题,采取多渠道多途径的综合干预策略及措施,帮助患者减少及降低经济毒性问题。

    Abstract:

    Objective To explore the psychological experience and coping strategies on financial toxicity among patients with esophageal cancer, so as to provide a reference for deeply understanding the intension of financial toxicity and taking targeted coping stra-tegies. Methods A phenomenological method was utilized, and 25 patients with esophageal cancer were selected using purposive sampling to conduct semi-structured in-depth interviews.The Giorgi phenomenal analysis method was used to analyze the interview data and extract themes. Results Three themes on esophageal cancer patients′ experience of financial toxicity were extracted:taking direct and indirect financial burden, phycological pressure, worrying about the future and uncertainty, serious impact of financial burden on daily life.Four themes on their coping strategies:reducing unnecessary treatment costs, reducing daily living expenses, seeking limited financial assistance, selecting and decision on job. Conclusion Patients with esophageal cancer face problems on financial toxicity, leading to various impact on their physical and mental health, and they take some strategies to cope with financial toxicity. It is suggested that government and administrators pay more attention to patients′ financial toxicity, and adopt multi-approach intervention to help them reduce the problem of financial toxicity.

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吕扬,刘欣哲,王诺筱萱,孟越,刘畅,朱清淼,于媛.食管癌患者经济毒性体验及应对措施的质性研究[J].护理学杂志,2023,28(5):29-33

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  • 收稿日期:2022-10-17
  • 最后修改日期:2022-12-15
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  • 在线发布日期: 2023-12-29