育龄期女性炎症性肠病患者生育决策困境的质性研究
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女,硕士在读,学生

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国家自然科学基金资助项目(71904146)


Dilemmas in decision-making about fertility:a qualitative study of reproductive-age women with inflammatory bowel disease
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    目的 探究育龄期女性炎症性肠病患者在生育决策中面临的困境,为临床实践者实施决策辅助支持提供依据。方法 选取14例育龄期女性炎症性肠病患者,采用现象学研究方法进行半结构化深入访谈,运用Braun主题分析法分析资料、提炼主题。结果 提炼出2个主题及7个亚主题:主观感知体验困境(决策意愿困境,认知偏差困境,角色冲突困境,负性情绪困境)与客观条件限制困境(支持环境困境,生育成本困境,行为后果困境)。结论 育龄期女性炎症性肠病患者存在主观与客观两方面的生育决策困境,医护人员应减少其在主观层面的错误认知与负性情绪,通过构建生育辅助决策方案与系统提供客观支持与干预,以降低决策困境。

    Abstract:

    Objective To understand the difficulties faced by reproductive-age women with inflammatory bowel disease (IBD) in fertility decision-making, and to provide reference for clinical practitioners to support decision-making. Methods Through in-depth semi-structured interviews with 14 reproductive-age women with IBD, this phenomenological study was used to examine the perceptions of decision-making about fertility. Data were analyzed via Braun and Clarke′s style of thematic analysis. Results Two themes and seven sub-themes emerged:subjective perceptions of difficulty (decision-making intention, cognitive bias, role conflict, and negative emotions) and objective restrictions (supportive environment, childbirth costs, and behavior consequence). Conclusion Reproductive-age women with IBD have subjective and objective difficulties in decision-making about fertility. Medical staff should help them change misconceptions, alleviate their negative emotions, develop decision aids to support fertility decision-making, and provide systematic support and interventions, to relieve their decision-making difficulties.

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薄瑾,刘晓红,曹品娟,孙素亚,陈伟仙,陈亚梅.育龄期女性炎症性肠病患者生育决策困境的质性研究[J].护理学杂志,2023,28(4):33-37

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  • 收稿日期:2022-09-12
  • 最后修改日期:2022-10-25
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  • 在线发布日期: 2023-12-29