青少年特发性脊柱侧凸患者照顾者心理痛苦体验的质性研究
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女,硕士,主管护师

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湖北省自然科学基金一般面上项目(2023AFB1086);华中科技大学同济医学院附属协和医院院级教学改革项目(2020XH38)


A qualitative study of psychological distress experiences of caregivers of adolescents with idiopathic scoliosis
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    摘要:

    目的 了解青少年特发性脊柱侧凸患者照顾者心理痛苦的心理体验,为临床制订针对性心理干预方案提供参考。方法 采用描述性现象学研究方法,对31名青少年特发性脊柱侧凸患者照顾者进行深度半结构式访谈,通过Colaizzi七步分析法进行资料分析,提炼主题。结果 共提炼出6个主题:疾病不确定感、对患者身体外观的过度关注、对患者生活质量的担忧、对患者心理健康的担忧、家庭生活方式调整的压力、焦虑抑郁与希望交织。结论 青少年特发性脊柱侧凸患者照顾者存在多种心理痛苦,医护人员需制订可行的心理干预计划,以降低其心理痛苦水平。

    Abstract:

    Objective To explore the psychological distress experiences of caregivers of adolescents with idiopathic scoliosis, and to provide a reference for targeted psychological intervention. Methods A descriptive phenomenological research method was employed. Semi-structured in-depth interviews were conducted with 31 caregivers of adolescents with idiopathic scoliosis. Data were analyzed using Colaizzi′s seven-step phenomenological approach. Results Six themes were identified:uncertainty of the disease, excessive concern about the patient′s physical appearance, worries about the patient′s quality of life, concerns about the patient′s mental health, pressure from lifestyle adjustment within the family, and a mix of anxiety, depression, and hope. Conclusion Caregivers of adolescents with idiopathic scoliosis experience various psychological distress. Healthcare professionals should develop practical psychological intervention strategies to alleviate caregivers′ distress level.

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曾莉,王慧文,晏蓉.青少年特发性脊柱侧凸患者照顾者心理痛苦体验的质性研究[J].护理学杂志,2025,(6):96-99

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  • 收稿日期:2024-08-15
  • 最后修改日期:2024-11-24
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  • 在线发布日期: 2025-04-28